Biography
Sue lives in British Columbia, on the West coast of Canada. She has two children, both in their twenties. Her parents were strong supporters of community life. She graduated from university with a Masters degree in Public Administration. Over the next 25 years Sue learned the ins and outs of government policy making, legislation, and strategic planning. She worked in all layers of government from Cabinet down and in different areas of policy. In 2011 her mother, who had Alzheimer’s, passed away. Their family had been her caregiver. Then three months later, Sue was diagnosed with Alzheimer’s. She has a rare form called Posterior Cortical Atrophy, or PCA. Sue was shocked, and had to do her own research into PCA as there is little understanding of it where she lives. PCA presents as visual issues rather than memory issues. Sue finally found support in a wonderful Facebook group based in London. She saw the power of using social media for direct help and support for those with dementia, and DAI is dedicated to our community of people with dementia and the need to speak out for ourselves and the next generation.