Dementia resources

This page consists of resources to support and educate people on dementia, such as resources for self-advocacy, language guidelines and other additional resources.
This page is under constant review. As we find more resources to support and educate people with dementia we will add them here. If you find a publication, resource, website or organisation that you think will help others, please contact us.

The Global Voices Of Dementia: Resources for Self-Advocacy

Dementia Alliance International (DAI), the Alzheimer’s Society UK, and the 3 Nations Dementia Working Group (3NDWG) worked in partnership to develop two resources to inform, educate, inspire and empower more people with dementia to become advocates.

Supporting Dementia Self-Avocates

A directory of resources which collates relevant online resources to support inclusive working and self-advocacy.

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The Many Voices of Dementia Advocacy

A short film with seven people living with dementia in different countries, talking about their experiences of self-advocating, their motivation and top tips.

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Language Guidelines

Alzheimers Society of Canada Person Centred Language Guidelines

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Dementia Australia Dementia Language Guidelines

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Dementia Words Matter: Guidelines on language about dementia

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Additional Resources

By Us For Us

A series of guides by the Murray Alzheimer’s Research and Education Program (MAREP), specifically for people with dementia, written by people with dementia.

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Core principles for involving people with dementia in research

The Scottish Dementia Working Group Research Sub-group

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Let’s talk about dementia

A post diagnostic resource by the Scottish Dementia Working Group "Please don’t label me, I am more than my dementia."

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Nothing ventured nothing gained

Risk guidance for people with dementia

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Supporting and Accommodating People with Dementia at Professional Conferences and Other Events

A report to help future conference organisers in their efforts at making conference experiences for people with dementia as meaningful, productive and accessible as they are for all other attendees.

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Dementia resources